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Let's Talk About *drumroll please* PAIN!
I know, I know. Why do I want to talk about something that would be better off numbed or ignored? Well, you see, I can't numb my pain...
Jules D
Jun 9, 20236 min read


New Blog to Check Out!
There is a new blog out and about called, "Dry Bones Live." The writer of these posts is Robin and these amazing posts deal with a little...
Jules D
Jun 9, 20231 min read


Donation Alert!
This group is absolutely amazing, and I am so glad to be a part of it! At the start of each month, we have a virtual meeting where we...
Jules D
Jun 9, 20231 min read


I Speak Jesus
Your name is POWER. Your name is HEALING. Your name is LIFE. Today I ran across something that wasn't so...nice. I had a posting on...
Jules D
Jun 9, 20234 min read


God is Remaking Me
God is taking my shattered heart and remaking me in His image, for His goodness. "I grabbed my chest while tears slipped down my cheeks...
Jules D
Jun 4, 20231 min read


It's Not Supposed to Be This Way
"In their hearts humans plan their course, but the Lord establishes their steps." Proverbs 16:9 When I think of how my life should be, I...
Jules D
Jun 3, 20232 min read


Respiratory Failure - Is That "Catchy?"
When PEOPLE set you aside, you feel neglected and rejected. But it's really GOD setting you apart to work your Godly magic!! Today I had...
Jules D
Jun 3, 20232 min read


One Step Forward - Ten Steps Back
You know that moment when you make progress, only to venture back further? Oh yes, with TBI this is a constant feeling now. They have...
Jules D
Jun 2, 20233 min read


Moments of Affliction
I know I haven't written in a while. I guess this post isn't really about TBI, but instead about pain and Jesus. Because who better to...
Jules D
May 24, 20232 min read


Discharge Is Like CHRISTMAS!!
As I sit here right now, even though I'm home, discharge seriously feels like Christmas!! It's like staying up all night and waking your...
Jules D
Dec 28, 20222 min read


Failed Over & Over Again
This is the FINALLY the time to get a PEG placement. All vitals have been taken care of and fentanyl given to make me sleeeeeeepy. The...
Jules D
Dec 27, 20223 min read


Rocking & Rolling
This is around the time that nurses and doctors were hurriedly trying to get my stuff right and rolling so I can be discharged on time....
Jules D
Dec 24, 20223 min read


To Be Clear....
...I am a survivor of a severe TBI! Where to begin? You have obviously read all of my previous posts to get this far. I have a head wound...
Jules D
Dec 18, 20223 min read


Rock Bottom
Today were exams upon exams. It was figured out today that I would need to see the neurological team because I had a traumatic...
Jules D
Dec 15, 20222 min read


I'm Unsure About This One...
This is why I'm unsure, there were zero consult notes or family meeting notes! It goes straight into the operation. They took me back...
Jules D
Dec 8, 20222 min read


Fear, He is a Liar.
This is the moment when I have spiky fevers. The doctors go in and run tests on me to see what is wrong, Doctors have found that I have a...
Jules D
Oct 30, 20222 min read


Perhaps I spoke too soon....
In this great stage of NNICU care, I may have gone backwards. The medical team has talked to my family multiple times now to let them...
Jules D
Oct 30, 20221 min read


On the tail end of being discharged.
We have gone through every test known to man! And some not known to man... Right now I have made my tracheotomy smaller and cuffless....
Jules D
Oct 8, 20221 min read
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