top of page

Search


New Brain, New Me
Below is my submission story to be thought of for the award through the amazing Brain Injury Connections! This is my story in a very...
Jules D
Apr 3, 20248 min read
373 views
1 comment


Anti-K Blood
Before I move along to Sheltering Arms Institute, I must inform you all of a little thing I contracted at UVA hospital. It is by no means...
Jules D
Jun 24, 20231 min read
34 views
2 comments


Discharge Is Around the Corner
Discharge is vastly approaching! We are waiting for Sheltering Arms Institute to have a bed that is ready. It's crazy to think this is...
Jules D
Jun 21, 20232 min read
25 views
0 comments


Be Still My Heart
This blog post is also going to be different and off the cuff as it happened yesterday! I am in a Brain Injury support group in...
Jules D
Jun 15, 20232 min read
80 views
0 comments


I Found YOU in the River
I can finally breathe again. 'Cause I found You in the river. I found You in suffering. And I found You on the mountain. You were always...
Jules D
Jun 14, 20233 min read
20 views
0 comments


I Speak Jesus
Your name is POWER. Your name is HEALING. Your name is LIFE. Today I ran across something that wasn't so...nice. I had a posting on...
Jules D
Jun 9, 20234 min read
29 views
0 comments


Respiratory Failure - Is That "Catchy?"
When PEOPLE set you aside, you feel neglected and rejected. But it's really GOD setting you apart to work your Godly magic!! Today I had...
Jules D
Jun 3, 20232 min read
12 views
0 comments


One Step Forward - Ten Steps Back
You know that moment when you make progress, only to venture back further? Oh yes, with TBI this is a constant feeling now. They have...
Jules D
Jun 2, 20233 min read
48 views
0 comments


Discharge Is Like CHRISTMAS!!
As I sit here right now, even though I'm home, discharge seriously feels like Christmas!! It's like staying up all night and waking your...
Jules D
Dec 28, 20222 min read
73 views
0 comments


Failed Over & Over Again
This is the FINALLY the time to get a PEG placement. All vitals have been taken care of and fentanyl given to make me sleeeeeeepy. The...
Jules D
Dec 27, 20223 min read
24 views
0 comments


Rocking & Rolling
This is around the time that nurses and doctors were hurriedly trying to get my stuff right and rolling so I can be discharged on time....
Jules D
Dec 24, 20223 min read
14 views
0 comments


To Be Clear....
...I am a survivor of a severe TBI! Where to begin? You have obviously read all of my previous posts to get this far. I have a head wound...
Jules D
Dec 18, 20223 min read
142 views
0 comments


Rock Bottom
Today were exams upon exams. It was figured out today that I would need to see the neurological team because I had a traumatic...
Jules D
Dec 15, 20222 min read
79 views
0 comments


I'm Unsure About This One...
This is why I'm unsure, there were zero consult notes or family meeting notes! It goes straight into the operation. They took me back...
Jules D
Dec 8, 20222 min read
56 views
0 comments


Fear, He is a Liar.
This is the moment when I have spiky fevers. The doctors go in and run tests on me to see what is wrong, Doctors have found that I have a...
Jules D
Oct 30, 20222 min read
55 views
0 comments


Perhaps I spoke too soon....
In this great stage of NNICU care, I may have gone backwards. The medical team has talked to my family multiple times now to let them...
Jules D
Oct 30, 20221 min read
56 views
0 comments


On the tail end of being discharged.
We have gone through every test known to man! And some not known to man... Right now I have made my tracheotomy smaller and cuffless....
Jules D
Oct 8, 20221 min read
64 views
0 comments


God is GREAT!!
A PEG tube is needed for adequate medication and food! Three of my chest tubes had been removed with minimal infection. MSSA pneumonia is...
Jules D
Oct 8, 20221 min read
75 views
0 comments
bottom of page