I Speak Jesus

Your name is POWER. Your name is HEALING. Your name is LIFE.

Today I ran across something that wasn't so...nice. I had a posting on social media all about God and reminding others to not take ANYTHING for granted,

Well, my sister decided to take a dump in my cheerios and list out everything that was wrong with me and my situation. I have taken a lovely break from social media and frankly, I don't know when or if I'll ever get back to it! Frankly, I don't know how to really feel about her or the situation. I think I feel more sadness than anything. A person must have a lot of hurt in their own lives to look down on a person who suffered TBI. I feel bad for her, and I hope that she finds Jesus and lets Him guide her life. I do pray that anyone who speaks ill of me, finds Jesus. And I want to make it known here that I forgive them and keep them in my prayers. I know that the more I speak of Jesus and God, the harder Satan is going to work against me. I have a wonderful support system and I'm well equipped to just give my problems and feelings to God! He is a GOOD Father. That I know and am sure of. My doctors all stress that I need POSITIVITY. They even wrote about it in their notes and have written about telling my family it was necessary for brain healing. But I guess that's one thing they didn't catch from the doctors.

Today is going to be a LITTLE long. The General Surgery team came into my room to give a cuffless tracheotomy. The anesthesia team was called in. No problems were reported, which is great for me right now!

The OT team has stopped coming to me because the OT team at Sheltering Arms was taking over. Just a couple more days! But this team will stay at my bedside if needed.

Right now, my doctor has said that I'm ill-appearing, my skin is pale, and I have decreased breath sounds. This is something they want to keep an eye on as this is the first tie, I have ever presented inconsistent breathing. I still have MSSA growth on culture. It has been noted a few times. My blood pressure is also sky high! Almost to the point of hypertension. My normal blood pressure is 92/64 and now it is 137/91.

Can I pause a moment and say how good God is? He is the one who fully knows and understands just what I've been through. He is the only one that has brought me back to life. Well, you know, using and guiding the doctors and such.

With my PT team today, I am lethargic. I am weak to follow simple commands. I am fatigued when standing and can only stand for about a minute. I sway back and forth, and my head keeps dropping, When I sit, I also need assistance because I can only manage it for about 30 seconds.

My husband was present during this time and gained information for family training. Right now, it's important for me to know the difference between night and day. So, I get adequate sleep at night and I'm not so lethargic during the day.

OT was called back in, and they had spent about 15 minutes with me. I needed some assistance with the washcloth to wash my face. She had to hold my elbow so I could keep my arm up and I could bend it. After I washed my face, I needed maximum assistance to put lotion on. She even placed my hands together for me in my lap. With my vision, I am unable to track laterally, and I roll my eyes up frequently. Right now, we have learned that I cannot track horizontally, and I will need to have surgery in the upcoming future to have it all corrected. We have also learned that every time I close my eyes, it looks like I'm rolling my eyes.

In her lovely notes today, OT explained that I present below the functional baseline and the cause are my deficits. I follow simple commands and I'm able to consistently answer two choice questions. I tolerated about 10 minutes of balance training in the Stryker chair. I have a supportive husband and I will benefit from further treatment. This session I scored a 6. Which anything below an 18 would require inpatient rehab.

During my session today with the speaking valve, I wasn't able to actually speak! They noted that I hummed a little bit with maximum encouragement. My husband was given the information needed and that my speaking valve was only to be in with an RN or SLP present. I really didn't talk today and resorted to head nodding. I was quite fatigued today! It was a LOOOONG day!

May I share a video with you today? I recommend and urge you to watch it to its entirety! It is so good, and I hope it moves and captivates you the way it has for me.