This is me at Sheltering Arms Institute in Richmond, VA. In this picture, I STILL don't have the top portion of my skull and later I learn that I have horizontal gaze palsy! That's why my eyes look so messed up. But in layman's terms, I have double vision in a BAD way.
My doctor at Sheltering Arms told me that I am special and rare. You see, people who usually suffered what I have can't look vertically. They can't look up and down. What makes me special? I can't look horizontally. I can't move my eyes from left to right.
Now I wear a patch on my eye so I can see one of everything and not two of everything. I also can't drive. So, there's an activity of daily living that I have to depend on other people! Brain Injury Connections has connected me to get a VPAS so they can pick me up and take me to my doctors!
My doctor now says that what I have is very complex. He had TWO students in the room, and they were ALL hunched over staring into my eyeballs. Even my husband was hunched over with them! I didn't have the eye patch on so they could look at both of my eyes. There were FOUR people; the doctor, the two students, and my husband; all hunched over staring at my eyeballs and I saw EIGHT people!
Talk about an experience!
How does one fix this? You see, your brain does. The muscles on the side of my eyes are extremely weak and the brain has to do the work.
I saw a motility ophthalmologist recently and he said that your brain does all eye healing in the first six months. After that, your brain moves on. Wherever your eyes are now, that's how they'll be forever.
Next step? Eye surgery. And in MULTIPLE phases. He said chances of my vision being corrected after the first surgery is slim. We have to give it some time!
THEN I get to have plastic surgery! TO FIX MY FACE! That'll be a later post though!
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